Five Feet Apart-Trailer Reaction

I'm going to preface this by saying that I'm going to react/respond to this trailer as someone who has battled a chronic lung disease but NOT Cystic Fibrosis (aka: CF). The illness that I had that led me to need (and receive) my transplant is Eisenmenger's Syndrome. In layman's terms, every time my heart would beat, the oxygenated blood and deoxygenated blood would mix and enter into my already worn out and severely underdeveloped lungs. My lungs were like leather while someone with CF has lungs that are like thick, creamy peanut butter. While I can never know what it's like to have that illness, I do have an understanding of it and even some of the treatments and medications (Albuterol! Nebulizer!).

Anyway, here is the trailer that was released in November: 

Five Feet Apart Trailer

Personally, anything that highlights a chronic illness and is able to educate the public about it is a good thing. Also, the part where Stella states, "This whole time, I've been living for my treatments instead of doing my treatments so that I can live and.... I wanna live!" really spoke to me and I'm sure many others who have a chronic illness because it's so incredibly true. 

Anyway, those are my thoughts on the film. I can't wait to see it (March 22nd!). If you would like to see a reaction post from someone who has Cystic Fibrosis, I HIGHLY RECOMMEND this one, from Cystik1: 

Five Feet Apart Trailer Reaction from Cystik1

New Year, New Goals, Same Me

Happy New Year! Also, Happy belated Birthday to me!! I can't believe my late-30s have snuck up upon me! Where has the time gone? 

As the title might suggest, I've got goals but am apprehensive that I'll be stuck being the same old me. Here are my goals:

Goals for 2018:

1.) Go the entire year without spending time in the hospital admitted.
2.) Finally loose those stinking 15-ish pounds!
3.) Trust God more.
4.) Improve my culinary skills!
5.) Try to cut more corners financially.
6.) Try to be a more positive person.
7.) Try not to be so into my electronic devices.
8.) Read more books and give myself a reading challenge to try and beat!
9.) Not be so hard on myself all the time.
10.) Try to be more consistent on keeping my apartment organized/clean.

A friend suggested I combine some of these (like #7 & #8) to make it a bit easier to accomplish. The one I know I'll have the hardest time with?  #2. It's always been hard for a few reasons: 1.) my birthday is right after the holidays so right when the New Year comes and I start to get into the zone, celebrations start which throws me off! 2.) I heart pasta! It is truly a weakness of mine! 

Sigh. Do you have any tips/suggestions on how I might be able to accomplish these goals? What do you hope to accomplish this year? Tell me! 

A Thing of Beauty

When I was waiting for my transplant, there was this girl. I'll call her Amy (note: that's not her real name) and she was super pretty. If we attended the same high school, she'd clearly be part of the popular crowd. She had large, expressive eyes, a friendly smile, fashionable (totally suitable for the mid '90s), a Southern accent.....and a heavy cough. She wasn't a smoker; she just had Cystic Fibrosis (CF). A genetic disease that affects (primarily) the lungs and digestive system. At first glance, you'd be struck at how attractive she was....until she was within close proximity and you either heard her breathe (very congested), saw the oxygen on her, or heard her coughing due to the thick mucus that was in her lungs. After that, she might seem less appealing to the average teenage male. Who would want to voluntarily surround themselves with someone who had a chronic, physical (but, at first glance, invisible) illness?

I'm never going to be pretty or gorgeous. Cute? Sure. Adorable? Absolutely! Gorgeous? Fuck no! Why? Due to my incredibly early arrival, I'm always going to have a "preemie" look about myself. Please don't try to humor, assure or (worse) soothe me by saying something like, "but you're so nice and that's more important than being pretty" or "but you're beautiful in the eyes of God" because, in all honesty, that'll only irritate me. 

I'm not trying to say that I see myself as ugly or anything of the nature. I'm trying to point out how, as a society, we put so much emphasis on appearance that someone who might be physically attractive, and want to woo at first glance, can easily get rejected once the mask is removed and their ailments are exposed. Simply, and bluntly, illness makes a person ugly. 

I remember being self-conscious about my appearance when I was growing up; I was always that awkward girl who was a late bloomer that wasn't into make-up until she was in her late teens, didn't start really attempting to style her hair until her 20s and now, in my late 30s, I'm FINALLY trying to create a skincare regiment that works best for me, trying to beat Father Time's ticking clock. I'm not quite sure where I'm going with this, but I wanted to highlight an issue that is happening for those who have chronic, but invisible, illnesses and to let them know that I understand and have been there (heck, some days, I still am).

MIA Explained!

Hi All!


Sorry that I've been MIA for so long!!


My last post was back in May, when I was in the middle of seeing the skin & wound care doctor regarding my feet.  Good news is that my feet are all better and I'm no longer wearing bandages around my legs.


The not-so-good news is that these foot ulcers were a pre-existing condition going back PRE TRANSPLANT plus, I have to wear compression socks FOR-EV-ER (imagine the character Squints from the movie The Sandlot saying that ;-) ).


Also, about three months ago, I celebrated the big 2-0 anniversary while at the Transplant Games of America (in Cleveland, Ohio).  Speaking of the games, I had a wonderful time though no medal (grrrr).


It's now September.  It's still hotter than heck here in Florida but I'm feeling pretty good.


OH!  I created my OWN Facebook page!  Check it out and give it a "Like" please!


Kimberly Jacques, Organ Transplant Recipient Mentor & Advocate


I haven't forgotten about this blog, promise! 

MEDS!!

YAY!!!  A new vlog FINALLY!!  Enjoy!!

TRANSPLANT GAMES OF AMERICA!!

Enjoy!

Sanitized Visits?

Latest vlog post!  Enjoy!